생태체계적 접근을 통한 호흡기장애인의 생활세계 경험에 대한 해석학적연구

This study aims to explore the life experiences of individuals with respiratory disabilities, who are classified as a minority within the disabled population, from an ecological systems perspective. To achieve this, five individuals with respiratory disabilities were selected using the snowball sampling method and were subjected to in-depth interviews. The collected data were analyzed through hermeneutic methods. The analysis yielded several key findings. First, within the personal system, respiratory illnesses were perceived as ranging from very mild diseases to formidable disabilities. Participants faced repeated cycles of hospital admissions and discharges, treatment and relapse, and confronted the fear of death amidst seemingly meaningless daily routines. The hospital system, initially a place for treating illnesses, gradually became associated with fear and pain. Both the school and workplace systems became inaccessible due to the severed interactions with external systems. Social support systems played a crucial role in overcoming these systemic disconnections. The process characteristics of the systems revealed that participants experienced psychological and emotional difficulties due to the repeated cycles of treatment and relapse, leading to disconnections from various external systems. Despite the fear of death, the intervention of family and social support systems enabled participants to hold onto a desired future. However, the absence of support systems resulted in a bleak perception of their future. Based on these findings, the study suggests the provision of transitional services, psychological service interventions, the establishment of social support systems, and support for housing improvements.